|
Current Fundraising
We are currently raising funds
to take Nicola to a conference in the UK, which is
being held at the Thistle London Heathrow Hotel from the 8th
- 11th September 2010.
This conference gives us a chance to not only have access to some of the doctors who actually know and understand this rare and very complex condition, but also a chance to break out of the isolation of living with a rare medical condition and spend time with other families who actually understand what we are dealing with on a daily basis.
To every person
who has helped us, without you, we would not be where we
are today, and our daughter would not be who she is today.
We thank you!
|
